Definizione di terminalità

Transcript

1 Definizione di terminalità...pz: Dottoressa io obbietto. io non terminerò io morirò! CS: Mr T non è Lei bensi la sua malattia che terminerà Da allora non ho piu parlato di pazienti terminali ma di pazienti con malattie terminali. Da Philosophy of terminal care in: The management of terminal disease 1st ed 197 C. Saunders pp , Londra Edward Arnold

2 Legge Art 2 (definizioni) 1- Ai fini della presente legge si intende per: a) cure palliative : l insieme degli interventi terapeutici, diagnostici e assistenziali rivolti sia alla persona malata sia al suo nucleo familiare, finalizzati alla cura attiva e totale dei pazienti la cui malattia di base, caratterizzata da un inarrestabile evoluzione e da una prognosi infausta, non risponde piu a trattamenti specifici;

3 WHO definizione del 2002 Appendix 1: WHO s Definition of Palliative Care Palliative care is an approach that improves the quality of life of patients and their families facing the problems associated with life-threatening illness, through the prevention and relief of suffering by means of early identification and impeccable assessment and treatment of pain and other problems, physical, psychosocia and spiritual. Precedente per pazienti whose disease is not responsive to curative treatment Journal of Pain and Symptom Management 91Vol. 24 No. 2 August 2002

4 Palliative care WHO definition Is applicable early in the course of illness, in conjunction with other therapies that are intended to prolong life, such as chemotherapy or radiation therapy, and includes those investigations needed to better understand and manage distressing clinical complications

5 Palliative care Palliative care is the active, total care of the patients whose disease is not responsive to curative treatment. Control of pain, of other symptoms, and of social, psychological and spiritual problems is paramount. Palliative care is interdisciplinary in its approach and encompasses the patient, the family and the community in its scope. In a sense, palliative care is to offer the most basic concept of care that of providing for the needs of the patient wherever he or she is cared for, either at home or in the hospital.palliative care affirms life and regards dying as a normal process; it neither hastens nor postpones death. It sets out to preserve the best possible quality of life until death Definizione della Associazione Europea di Cure Palliative European Association for Palliative Care (EAPC)

6 Una prospettiva europea Palliative Care: A model for innovative health and social policies Resolution on palliative care, adopted on 29th of January by the Parliamentary Assembly of the Council of Europe. (Risoluzione 1649,2009) Rapporteur: Wolfgang Wodarg

7 Consiglio d Europa (Risoluzione 1649,2009) Le cure palliative permettono alle persone con malattie gravi forti dolori o grande disperazione di esercitare la loro autodeterminazione. L approccio delle Cure Palliative contribuisce direttamente all asserzione dei diritti umani, civili e partecipativi fino alla morte dell individuo

8 Consiglio d Europa (Risoluzione 1649,2009) Recommendation Rec (2003) 24 of the Committee of Ministers to member states on the organisation of palliative care (Adopted by the Committee of Ministers on 12 November 2003 at the 60th meeting of the Ministers' Deputies) II. Settings and services 5. Specialist palliative care should be available for all patients when they need it, at any time and in any situation.

9 European Parliament Report Policy Department Economic and Scientific Policy Palliative Care in Europe JANUARY 2004 Policy Department Economic and Scientific Policy PALLIATIVE CARE IN THE EUROPEAN UNION STUDY IP/A/ENVI/ST/

10 Atlas of Palliative Care in Europe EAPC services / million h

11 ESTONIA SLOVAKIA. PORTUGAL GREECE MALTA ROMANIA CYPRUS SLOVENIA CZECH REPUBLIC BULGARIA HUNGARY LITHUANIA LATVIA FINLAND DENMARK ITALY AUSTRIA LUXEMBURG BELGIUM GERMANY SPAIN FRANCE POLAND NETHERLANDS SWEDEN IRELAND UNITED KINGDOM EAPC GLOBAL INDEX ON THE DEVELOPMENT OF PC IN EUROPE PC RESOURCES VITALITY OF PC MOVEMENT